Economic Burden

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Lead Author(s): 

Jonathan S. Kirschner, MD, RMSK
Se Won Lee, MD

Supporting Author(s): 

Sylvia I. Watkins-Castillo, PhD

Studies of healthcare costs and resource utilization in patients with inflammatory myopathy in managed health care revealed annual medical costs were higher among newly diagnosed patients with inflammatory myopathy compared to the unaffected controls.1

The direct annual medical cost of Duchenne muscular dystrophy ranges from $20,000 to over $50,000 depending on the study methodology. Medical costs include direct cost related to the myopathy and secondary problems as a consequence of myopathy including cardiac, respiratory, nutritional, and spine complications. Medical cost related to the myopathy and secondary problems both increase over time.2

Mean hospital charges in 2013 for diagnoses of myopathy and neuromuscular disorders were $81,800 for a mean stay of 8.9 days. This was the longest stay and highest mean charges of all neuromuscular disease categories. (Reference Table 6B.2.1 PDF CSV and Table 6B.2.2 PDF CSV)

  • 1. Furst DE, Amato AA, Iorga SR, et al. Medical costs and health-care resource use in patients with inflammatory myopathies in an insured population. Muscle Nerve 2012;46(4):496-505. doi: 10.1002/mus.23384.
  • 2. Bell CF, Kurosky SK, Candrilli SD. Muscular dystrophy-related hospitalizations among male pediatric patients in the United States. Hosp Pract (1995) 2015;43(3):180-5. doi: 10.1080/21548331.2015.1033375.


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